OMERACT Endorsement of Patient-reported Outcome Instruments in Antineutrophil Cytoplasmic Antibody-associated Vasculitis

Robson, Joanna; Tomasson, Gunnar; Milman, Nataliya; Ashdown, Sue; Boonen, Annelies; Casey, George; Cronholm, Peter; Cuthbertson, David; Dawson, Jill; Direskeneli, RAFİ; Easley, Ebony; Kermani, Tanaz; Farrar, John; Gebhart, Don; Lanier, Georgia; Luqmani, Raashid; Mahr, Alfred; McAlear, Carol; Peck, Jacqueline; Shea, Beverley; Shea, Judy; Sreih, Antoine; Tugwell, Peter; Merkel, Peter

doi:10.3899/jrheum.161139

OMERACT Endorsement of Patient-reported Outcome Instruments in Antineutrophil Cytoplasmic Antibody-associated Vasculitis

Robson J. C., Tomasson G., Milman N., Ashdown S., Boonen A., Casey G. C., ...More

JOURNAL OF RHEUMATOLOGY, vol.44, no.10, pp.1529-1535, 2017 (SCI-Expanded, Scopus)

Publication Type: Article / Article
Volume: 44 Issue: 10
Publication Date: 2017
Doi Number: 10.3899/jrheum.161139
Journal Name: JOURNAL OF RHEUMATOLOGY
Journal Indexes: Science Citation Index Expanded (SCI-EXPANDED), Scopus
Page Numbers: pp.1529-1535
Keywords: ANCA-ASSOCIATED VASCULITIS, PATIENT-REPORTED OUTCOMES, PROMIS, ICF, OMERACT, QUALITY-OF-LIFE, ANCA-ASSOCIATED VASCULITIS, WEGENERS-GRANULOMATOSIS, CLINICAL-TRIALS, CORE SET, INVOLVEMENT
Marmara University Affiliated: Yes

Abstract

Objective. The antineutrophil cytoplasmic antibody-associated vasculitides (AAV) are multiorgan diseases. Patients with AAV report impairment in their health-related quality of life (HRQOL) and have different priorities regarding disease assessment compared with physicians. The Outcome Measures in Rheumatology (OMERACT) Vasculitis Working Group previously received endorsement for a core set of domains in AAV. Two approaches to measure patient-reported outcomes (PRO) were presented at OMERACT 2016.