OMERACT Endorsement of Patient-reported Outcome Instruments in Antineutrophil Cytoplasmic Antibody-associated Vasculitis

Robson, Joanna; Tomasson, Gunnar; Milman, Nataliya; Ashdown, Sue; Boonen, Annelies; Casey, George; Cronholm, Peter; Cuthbertson, David; Dawson, Jill; Direskeneli, RAFİ; Easley, Ebony; Kermani, Tanaz; Farrar, John; Gebhart, Don; Lanier, Georgia; Luqmani, Raashid; Mahr, Alfred; McAlear, Carol; Peck, Jacqueline; Shea, Beverley; Shea, Judy; Sreih, Antoine; Tugwell, Peter; Merkel, Peter

doi:10.3899/jrheum.161139

OMERACT Endorsement of Patient-reported Outcome Instruments in Antineutrophil Cytoplasmic Antibody-associated Vasculitis

Robson J. C., Tomasson G., Milman N., Ashdown S., Boonen A., Casey G. C., ...Daha Fazla

JOURNAL OF RHEUMATOLOGY, cilt.44, sa.10, ss.1529-1535, 2017 (SCI-Expanded, Scopus)

Yayın Türü: Makale / Tam Makale
Cilt numarası: 44 Sayı: 10
Basım Tarihi: 2017
Doi Numarası: 10.3899/jrheum.161139
Dergi Adı: JOURNAL OF RHEUMATOLOGY
Derginin Tarandığı İndeksler: Science Citation Index Expanded (SCI-EXPANDED), Scopus
Sayfa Sayıları: ss.1529-1535
Anahtar Kelimeler: ANCA-ASSOCIATED VASCULITIS, PATIENT-REPORTED OUTCOMES, PROMIS, ICF, OMERACT, QUALITY-OF-LIFE, ANCA-ASSOCIATED VASCULITIS, WEGENERS-GRANULOMATOSIS, CLINICAL-TRIALS, CORE SET, INVOLVEMENT
Marmara Üniversitesi Adresli: Evet

Özet

Objective. The antineutrophil cytoplasmic antibody-associated vasculitides (AAV) are multiorgan diseases. Patients with AAV report impairment in their health-related quality of life (HRQOL) and have different priorities regarding disease assessment compared with physicians. The Outcome Measures in Rheumatology (OMERACT) Vasculitis Working Group previously received endorsement for a core set of domains in AAV. Two approaches to measure patient-reported outcomes (PRO) were presented at OMERACT 2016.