The international primary ciliary dyskinesia cohort (iPCD Cohort): methods and first results

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Goutaki M., Maurer E., Halbeisen F. S., Amirav I., Barbato A., Behan L., ...More

EUROPEAN RESPIRATORY JOURNAL, vol.49, no.1, 2017 (SCI-Expanded)

• Publication Type: Article / Article
• Volume: 49 Issue: 1
• Publication Date: 2017
• Doi Number: 10.1183/13993003.01181-2016
• Journal Name: EUROPEAN RESPIRATORY JOURNAL
• Journal Indexes: Science Citation Index Expanded (SCI-EXPANDED), Scopus
• Marmara University Affiliated: Yes

Abstract

Data on primary ciliary dyskinesia (PCD) epidemiology is scarce and published studies are characterised by low numbers. In the framework of the European Union project BESTCILIA we aimed to combine all available datasets in a retrospective international PCD cohort (iPCD Cohort).