Standardised clinical data from patients with primary ciliary dyskinesia: FOLLOW-PCD

Goutaki M., Papon J., Boon M., Casaulta C., Eber E., Escudier E., ...Daha Fazla

ERJ OPEN RESEARCH, cilt.6, sa.1, 2020 (ESCI) identifier identifier

  • Yayın Türü: Makale / Tam Makale
  • Cilt numarası: 6 Sayı: 1
  • Basım Tarihi: 2020
  • Doi Numarası: 10.1183/23120541.00237-2019
  • Dergi Adı: ERJ OPEN RESEARCH
  • Derginin Tarandığı İndeksler: Emerging Sources Citation Index (ESCI), Scopus, EMBASE, Directory of Open Access Journals
  • Marmara Üniversitesi Adresli: Evet

Özet

Clinical data on primary ciliary dyskinesia (PCD) are limited, heterogeneous and mostly derived from retrospective chart reviews, leading to missing data and unreliable symptoms and results of physical examinations. We need standardised prospective data collection to study phenotypes, severity and prognosis and improve standards of care.