Standardised clinical data from patients with primary ciliary dyskinesia: FOLLOW-PCD


Goutaki M., Papon J., Boon M., Casaulta C., Eber E., Escudier E., ...Daha Fazla

ERJ OPEN RESEARCH, cilt.6, sa.1, 2020 (ESCI İndekslerine Giren Dergi) identifier

  • Yayın Türü: Makale / Tam Makale
  • Cilt numarası: 6 Konu: 1
  • Basım Tarihi: 2020
  • Doi Numarası: 10.1183/23120541.00237-2019
  • Dergi Adı: ERJ OPEN RESEARCH

Özet

Clinical data on primary ciliary dyskinesia (PCD) are limited, heterogeneous and mostly derived from retrospective chart reviews, leading to missing data and unreliable symptoms and results of physical examinations. We need standardised prospective data collection to study phenotypes, severity and prognosis and improve standards of care.