The Burden of Primary Caregivers of Spinal Muscular Atrophy Patients and Their Needs

ACAR A. E., Saygi E. K., Imamoglu S., Ozturk G., ÜNVER O., Ergenekon P., ...Daha Fazla

TURKISH ARCHIVES OF PEDIATRICS, cilt.56, sa.4, ss.366-373, 2021 (ESCI) identifier identifier identifier

  • Yayın Türü: Makale / Tam Makale
  • Cilt numarası: 56 Sayı: 4
  • Basım Tarihi: 2021
  • Doi Numarası: 10.5152/turkarchpediatr.2021.20117
  • Dergi Adı: TURKISH ARCHIVES OF PEDIATRICS
  • Derginin Tarandığı İndeksler: Emerging Sources Citation Index (ESCI), Scopus, TR DİZİN (ULAKBİM)
  • Sayfa Sayıları: ss.366-373
  • Anahtar Kelimeler: Care burden, family needs, social support, spinal muscular atrophy, QUALITY-OF-LIFE, FAMILY NEEDS, CHILDREN, ADOLESCENTS, PARENTS, RELIABILITY, VALIDITY, ANXIETY, STRESS
  • Marmara Üniversitesi Adresli: Evet

Özet

Aim: This study aims to reveal the problems faced by families of children with spinal muscular atrophy (SMA), by evaluating their care burden, needs, and expectations.